Jeremiah30:17 says, “I will restore health to you and heal you of your wounds.”
To catch you up: in February 2025 I was diagnosed with breast cancer. In March 2025, the stress of the diagnosis did a number on my autoimmune system response causing a peri-anal abscess to painfully surface and required an “incision and drainage” in the operating room. In April 2025, I underwent a double mastectomy to remove the known cancer found in my left breast and, ultimately, the unknown cancer later found in the pathology from within my right breast.
In the months to come I learned a valuable lesson: there is a difference between relaxation and restoration.
Many of us take a vacation to relax but often find we are still fatigued when we return to our daily lives. One might even say, “I need a vacation from my vacation.”
We sit on a beach, ride on a boat, nap, watch Netflix, read, take long walks, enjoy nature, explore new places, etc.
These, and many others, are the things that relax us.
I’m 50 years old now and I can say I’ve been blessed to be able to have taken many vacations. I’ve been to quite a few places and look forward to visiting many more as my future continues to unfold.
Coming home from a vacation, though, is often the same experience: laundry must be done, food must be purchased, and meals need to be planned. There have been too many times where the arguing began fairly quickly upon walking through our door at home between my husband and I as we unraveled vacation life into reality with a return-to-work in our very near futures.
The relaxation we experienced was seemingly left on the beach many miles away.
I had been relaxed, but not restored, in my vacation.
In the recovery, after the mastectomy, I discovered that what I required was more than being relaxed or calm… I needed to be made well; made whole: restored.
1 Peter 5:10 writes, “And after you have suffered a little while, the God of all grace, who has called you to eternal glory, will himself RESTORE, CONFIRM, STRENGTHEN, AND ESTABLISH you.”
Looking whole externally while feeling incomplete at the same time became the new normal I walked around with for the next almost 6 months.
In my recovery, I determined to do just that and that only: recover. I decided that was my now full-time job and I embraced it as best as a person could (especially a person who considers themself a “do-er”).
However, the months to follow became a new season: one of restoration.
This was not to be something done organically or to receive through osmosis. This was going to require as much intentionality as the season of recovery called for.
Why?
I’m glad you asked.
I wasn’t looking to “bounce back” after my experience with cancer; I was looking for deeper healing. I was not wanting to go back to my previous status quo like a person does after going on a vacation because I, instead, was still reeling that the diagnosis had even happened and that my body was forever altered on account of it.
I may look “well” on the outside, but there are scars you do not see: literal and figurative ones.
I decided to follow the example given to us in Psalm 23. To let Him guide me along right paths so He would restore my soul.
I guess I should describe these right paths, eh?
Do not be conformed to this world, but be transformed by the renewal of your mind, that by testing you may discern what is the will of God, what is good and acceptable and perfect.
Romans 12:2
That meant, no matter how uncomfortable it felt, I needed to become ok with not being ok even though all looked like it was ok on the outside. The “world” wants me to fake it until I make it, but I believe God is calling me to something more than that: authenticity.
Trust in the Lord with all your heart, and do not lean on your own understanding. In all your ways acknowledge Him and He will direct your paths.
Proverbs 3:5-7
You see, it isn’t about “why me” or “why did this happen.” I doubt, even if I had the answers, it would make sense because I cannot grasp the concept of theodicy: the theological response to the problem of suffering (trust me, I study it a lot). What I do know is that I need to trust in the Lord with all my heart and trust in Him when I cannot understand what is going on or why. And when I do? He makes my path straight.
Ponder the path of your feet; then all your ways will be sure.
Proverbs 4:26
There is no easy way to say it, so here it goes: we need time of reflection. We need LOTS of time to reflect on where we’ve been, where we are, and where we’re going. We have to TAKE that time for ourselves. We need to carve out that space in our busy schedules because we are worth taking that time for ourselves. We need to lament what we’ve lost. We need to rest in thankfulness. We need to ponder possibilities. We need to be in awe and wonder of this big world we are a part of. We need to question what we do not understand. Jesus said if we “seek, we will find”: if we don’t take the time to seek, what do you think we will miss finding? Peace? Contentment? Healing? Hope?
Your word is a lamp to my feet and a light to my path.
Psalm 119:105
If we want to know where we are or where we are going, then we need light to direct us so we can see. The Bible is the Word that illuminates the way to go. Hebrews 4:12 tells us that the Bible is alive and active! 2 Timothy 3:17 reminds us that Scripture is breathed out by God for teaching, training, and equipping for every good work! Deuteronomy 29:29 encourages that the things revealed by God are so we know what to do as we follow Him.
My point is that we need to be in the Word.
The weeks following my surgery was the recovery time. The months to follow have been for restoration.
I slowed down, for once, and literally smelled the roses.
I watched the water as it splashed onto the shore.
I listened to the birds in my yard.
I tasted and saw that the Lord is good (Psalm 34:8).
I was touched by the favor of God in the process.
Now before y’all think I’m too holy for words, remember that I do work for a living. I have a family. I have friends. I am active in my role as pastor at my church. I have a chronic illness that likes to get in my way. I lean toward the lazy side and like snacks way too much. My doom-scrolling time can get out of hand. I’m pretty darn normal.
Taking time with the Lord for restoration, as I said, takes intentionality. Taking time with any relationship requires a discipline of intention, so why would my personal relationship with Christ be any different?
I need to be in His presence in order to bask in His goodness so He can restore to me the joy of my salvation.
I make choices for how to start my day, what I listen to, what I read, and who I spend time with… all that with a common goal of edification and growth in the Lord.
The restoring process leads me to the rebuilding process that is coming next with the literal reconstruction of my body…
First of all, I want to say thank you to all who have read this blog journey. Secondly, I did not intend to write and publish my thoughts to attract attention or to seek sympathy, however I have been overwhelmed by the support you have shown to me through your comments and face to face interactions. My purpose in writing publicly was to process my thoughts, to safeguard my memories of this experience, and to encourage others who may have had or will have a similar experience.
Today marks the beginning of the 6th week since my bilateral mastectomy surgery.
You have joy even though you may have had to suffer for a little while. You may have had to suffer sadness in all kinds of trouble. Your troubles have come in order to prove that your faith is real. Your faith is worth more than gold. `~1 Peter 1:6-7
When I came home from the hospital, we all were surprised how incredibly TIRED I was! To be honest, I do not remember too much until about 3 days later- which is just crazy!
That nerve blocker worked like a dream so I was able to maintain a decent comfort level with the pain medication recommended. Dan proved himself to be a wonderful nurse and kept a close eye on when it was time for me to have my next dose for pain control and my antibiotics. He made sure I always had something to drink close by, that I was safe with simple ambulation to the bathroom, and that I woke up to eat something every now and again.
Essentially, this was Home Base for the first week or so.
I had four drains coming out of my sides under each armpit (2 on each side). Those needed to be drained and measured twice a day and my husband proved to not be squeamish at all! I was very impressed with his tender loving care!!
Side note: those drains HURT.
Pain medication does not eliminate the discomfort that comes from pushing on the sore spot. When a person is still, the discomfort is less. With movement, however, a person feels all of it. It’s just the way it goes with incisions and drains: we’re going to feel pain. We still have to move around, as sitting in one place is not a viable option either for recovery.
We’re going to feel the pain. I’m going to feel the pain.
As a nurse, I have been known to say that “surgical pain heals.” Well, I’m banking on that one, folks… It sure better.
At the 1 week “surgery anniversary”, Dan and I ventured out for a car ride to visit our surgeon. This was the first time I could really talk to her while not under the influence of anesthesia as well as get the official pathology results from my breast tissue that was removed.
While there we received good news and surprising news.
The good news: all the cancer was removed with good, clean/clear margins. There were 2 tumors found in the left breast that were both Invasive Ductal Carcinoma HER+. The lymph nodes removed showed no signs of cancer.
PRAISE THE LORD!
The surprising news? There was another tumor found in the right breast that also came back HER+ but called NON-invasive Ductal Carcinoma.
A second cancer in the other breast.
I looked that surgeon in the eye and said, “I MADE THE RIGHT CHOICE FOR THE BILATERAL MASTECTOMY. I KNEW I NEEDED TO HAVE ONE. I JUST KNEW IT!”
Then I promptly burst into tears!
Her response was an emphatic, “yes, you did.” She was genuinely shocked by the pathology as this was not expected at all.
All that worrying and wondering about what kind of surgery to have… wondering if I was being “dramatic” for going so “over the top” in my treatment choice… I WAS RIGHT.
Praise God for the guidance that helped me make the right decision for me.
Trust in the Lord with all your heart. Don’t lean on your own understanding. In all your ways acknowledge Him and He will direct your paths ~Proverbs 3:5-6
Two shell-shocked people people left the office that day.
The next day we had a different appointment with the plastic surgeon so we could now begin the process of “filling.”
This is a sample replica of the “fun” little gadget that was put into me. It is called a “spacer” and its design is to be filled up like a balloon weekly so my skin can slowly stretch around it in preparation for the permanent implant to be surgically placed in a few months time.
The “filling” itself is not painful (I’ll spare you the details), but the stretching…. Oh my goodness gracious. That’s a whole other thing.
Yikes. It hurts.
When it stops hurting…guess what? It’s time for another fill!
We do this until I say we are done. That means when I’m at the “size” I want to be from now on.
And the God of all grace, who called you to His eternal glory in Christ, after you have suffered a little while, will Himself restore you and make you strong, firm, and steadfast ~1 Peter 5:10
Washing My Hair Day became the highlight of my week in those early days. It is certainly not a flattering picture, but it’s as real as it gets folks…I was not allowed to do much with my arms – especially repetitive motion activities – because it would cause fluid to build up in my surgical area. That means “scrubbing my head” myself was out. The other component is that it hurt to lift my arms, let alone to hold themup over my head, so this was just not an activity I could do by myself.
Thankfully, as you can tell from the picture, my family enjoyed helping.
I was not allowed to shower as long as those darn drains were in… they stayed in for 4 weeks. 4 weeks of no showering or immersion bathing. 4 weeks. Now, it is one thing to have help washing my hair and emptying my drains…but it is a whole other thing to require assistance with bathing.
I am an RN. I am the person who helps others. I have bathed many hundreds of people over my years as a bedside nurse. I know it is not a big deal. I know it is something that just needs to be done.
It’s not a big deal until you are the one who needs help with that particular activity of daily living.
Dan and I met when I was 21 to his 22 years of age. We got married when I was 23 and he was 24.
We bought our home when I was 25 and he was 26 years old. Our Troy was born when I was 27 and Nic came into this world when I was 30 years old.
We celebrated our 25th Wedding Anniversary this past Labor Day when we visited Troy in the PNW.
We have been to the pits in our marriage and have been restored to something far better with the help of Jesus Christ. We are committed to the vows we spoke on that beautiful day 25+ years ago. We are committed to each other. We are committed to our family. We are committed to the Lord.
But…this has been hard.
Not on our marriage, per se… just hard.
“In sickness and in health…until death do us part” are real words all the sudden. They mean something now. In “sickness” means more than sitting by a bedside while others provide the care. It means that YOU provide the care. YOU protect the person you are committed to. YOU advocate for that person.
YOU wash their back when they can’t.
YOU cry quietly behind them while they cry openly on the stool when sitting in front of you while you run the soapy rag over their back.
And when they cry while alone with you in the bedroom at night, you cry with them too.
That’s marriage.
It’s as humbling as it is beautiful.
The day those drains came out meant I could finally shower! It meant I was also one step closer to finally sleeping on my side and that it would not hurt as bad anymore when I lifted my arms up over my head or was hugged by those who love me.
Thanks to a friend we had our first shower chair in the house! I have never felt so good as I did when that hot water ran over me that wonderful day! I turned on Spotify as I climbed into the shower and the song that came on was “I’m still counting my blessings”. To listen to music that declared the thankfulness I was feeling from such a simple pleasure brought me to tears.
Building my endurance came next. I slowly began to walk 1 lap around the block and then 2…and then 3. I still could not do much with my arms though so these were not high cardio laps!
Going to the grocery store (with a companion) became the place where I realized I could measure my progress. After the first time we went, I was so exhausted I needed to take a nap. It progressed to needing to only sit down while Dan did the check out part (but that was after we had already been at a different store first).
I also started driving by myself.
I finally went back to church… and to restaurants… even to a show to see Hamilton!
We’ve had many visitors over these weeks to help lift my spirits. We’ve received many cards, calls, and texts too. People have been incredibly generous with gifts and meals as well.
I’ve had a silly goal that I want to carry my purse again.
My purse choice has always been to be a large one and I was specifically told it was too heavy for me to carry. Initially, I had a 3lb weight limit that very slowly increased to 10 lbs. I’ve never weighed my purse, but the running joke is that is weighs more than my dog weighs (a 16lb shiatzu). All that means is carrying my purse is just not gonna happen.
I’m known for my big bags. I LIKE my big bags. It’s one of those crazy “identity” things.
I’ll know I’m better when I’m carrying it again.
Well…here we are on the 1st day of week 6 and I’m carrying that purse around now!
Silly goals work, I guess!
My body is healing. I’m preparing to return to work as an RN and as a pastor. I’m thinking ahead. I’m eating healthy. I’m wanting to make plans for the future. My emotions are a work in progress and something to write about on a different day.
On February 3, while I was spending alone time with the Lord (I often refer to it as a Spiritual Retreat), one passage stood out from all the others I read that afternoon:
“Do not fear, for I have redeemed you; I have summoned you by name; you are mine. When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the Lord your God, the Holy One of Israel, your Savior…Since you are precious and honored in my sight, and because I love you, I will give people in exchange for you, nations in exchange for your life. Do not be afraid for I am with you… (Isaiah 43:1-5)
Big words to repeat to myself when I found the lump not too long later…when I told my husband what I believed in my heart to be coming our way… as I went through the 3-D mammogram, ultrasound, and biopsy… when we heard the results a few days later…as we told our children, my parents, our closest friends.
I have cancer.
As the title says: It takes the wind right out of you. It sweeps your legs out from underneath you. It starts you on a journey you never dreamed you would go on.
But do not be afraid when you go….
“It can be easy to follow God as long as He’s following your terms. But anyone who follows Christ on their own terms, for a return on investment, misses out on intimate communion with the God of the universe and is instead left holding a detailed contract with a business acquaintance… Christianity is about following Jesus to get the riches of Jesus Himself... There is a holy world of difference between a relationship with God that embraces and enters into suffering, knowing that suffering is always exactly the shape and form and heart of His passion, and the kind of relationship that braces to avoid all suffering, passionately demanding a life of no suffering if God really loves us” (Ann VosKamp’s Loved to Life).
This is our choice: EMBRACE and enter suffering or BRACE to avoid suffering.
Whether we will suffer or not is not what is in question. The question, the choice we have to make, is how will we approach it when we face it.
When you pass through the waters.
When you pass through the rivers.
When you walk through the fire.
VosKamp goes on to write, “If God asks much of you, how much will you answer with your life? If God asks for complete authority over your life but doesn’t give you completely what you want, do you still completely give yourself to Him?”
Following the feeding of the 5000 where those who followed Jesus were given enough bread (and fish) to not only be satisfied but to also have leftovers, Jesus gave the difficult to hear teaching where He declared Himself to be the Bread of Life: partake of Him and NEVER be hungry again.
He met their physical need of hunger miraculously and they were thrilled…ecstatic… ready to make Him their King by force then and there. But when He went beyond meeting their physical need to discuss their spiritual hunger and His ability to satisfy their spirits and their eternity..? He was rejected.
Miracles? Yes, please. Sign me up.
Be challenged to believe that the miracle worker is truly the Son of God? Receive sustenance for the immediate hunger: yes. Receive sustenance for eternal hunger: no.
“Very truly I tell you, the one who believes has eternal life. I am the bread of life. Your ancestors ate the manna in the wilderness, yet they died. But here is the bread that comes down from heaven, which anyone may eat and not die. I am the living bread that came down from heaven.Whoever eats this bread will live forever. This bread is my flesh, which I will give for the life of the world”
John 6:47-51
People want miracles. People want an immediate fix to the present uncomfortable situation. People want an instant alleviation to pain. Yet, Jesus offers so much more than that. He challenges His followers to see beyond these present sufferings to a much bigger picture… a much bigger perspective… a much longer existence than this mortal life.
He says, I give you food and you will still die. You partake of ME and you will LIVE.
While we want to brace against suffering, Jesus says, “Let me take you through it and see what I will do with it… I overcome it.”
That is called RESSURECTION POWER, folks.
Lysa TerKeurst writes, “Just as we must sit close enough to a tree to enjoy the benefits of its shade from the scorching heat, so we must also position ourselves near to God if we desire His comfort, protection, and deliverance” (Seeing Beautiful Again Page 48).
There is a problem with hard lessons, though. We do not like them… we want to avoid them…maybe even abandon the cause we once stood for or believed in when it was easier to do so.
We inadvertently step away from the tree that we could benefit from.
When Jesus gave His teaching that He was the bread of life, we read the response of those who were listening in John 6:66~
From this time many of his disciples turned back and no longer followed him.
They walked away from the tree that provides the benefits. This was AFTER they saw His miraculous feeding too.
They wanted what they wanted from Him and not what He wanted to give…when what He would give was going to satisfy them far more than they were willing to imagine.
What am I willing to imagine?
Jesus looked at His chosen twelve disciples and asked them if they were going to leave Him too…
Their collective response came from Peter in verse 68~
Lord, to whom shall we go? You have the word of eternal life.
There is that choice: embrace and face it or brace to avoid it.
Jesus was teaching things people- even His closest disciples- did not understand and He was starting to make enemies of those listening. In a sense, He was losing His popularity and gaining hostility wherever He went. He was not performing in the way they believed the Messiah should.
“It can be easy to follow God as long as He’s following your terms“
(Ann VosKamp’s Loved to Life).
Leading up to my surgery date, I was surrounded by people who kept amazing me with their love and support for me.
I was overwhelmed by my coworkers who wore matching shirts they had purchased in my honor and surgical hats to bring awareness to the Breast Cancer cause. We met for a dinner where they gave me a huge poster board signed by many that I come into contact with during my work days and we laughed together as we ate together (which is rather unheard of in the nursing world to be able to all eat at the same time).
My girl and I had a “Garrie-Day” where we just spent the day together doing things that she and I liked to do together.
My best friend took me indoor “sky-diving”! Have you ever been? I highly recommend it! I do not think I ever felt more alive than when I was “flying”!!
The night before my surgery, my best friends came over for a “bra-burning” celebration with mocktails and karaoke. We realized that when the bra is burned, the support wires remain. How interesting is that? After the fire, the support is still there…
I then spoke on the phone with both of my sons who were unable to come home for my surgery. I wanted to tell them how much I loved them, how proud I was of them, that it was more than okay that they keep going with what they had going on (Nic was completing his finals at WMU and Troy is stationed in Washington). I did not want them to feel any guilt or regret that they were not home: they were exactly where I wanted them to be. Have I mentioned that I love them lately??
Through all this, my wonderful husband stood by in his quiet way, letting my cup be filled with those the Lord had placed in our path over the years. I cannot count the number of texts, emails, calls, and cards I have received telling me that I am loved and that I matter in this world. It is hard to describewhat the knowing of that means to a person who is fighting off fear, so I thank you for arming me for battle.
There is no fear in love, but perfect love drives out fear (1John 4:18)
When I woke up on my surgical day, I took the last shower that I could have for a few weeks. I could not wear makeup but I opted to do my hair as I figured I might as well look as nice as I could: “dress for success” and all that I guess.
I ran into a co-worker upon my arrival to the hospital and got in a “last” hug of support from the “chosen” Endo representative. However, when I woke up from my surgery, Dan informed me that he had run into another co-worker in the cafeteria during my surgery and she was wearing a #TeamAmy shirt! I later realized when numerous co-workers sent me texts with pictures of themselves that they ALL wore those shirts once again on my surgery day – unbelievable.
My emotions began to creep up on me the closer to my surgical time came. My eyes burned so much it was hard to see.
More OR co-workers peeked around my privacy curtains to say hello and to wish me well. I surprisingly wheeled by my colo-rectal surgeon while on the way to the area where my Sentinel Node was to be injected. When I was wheeled back to my curtain area upon completion of the Sentinel Node marking, I saw that my oldest friend from college surprised me by driving over two hours just to sit in the waiting room with my family.
Minus my sons, all those I loved were grouped in a bunch in the waiting room wearing matching shirts that said “this is a beautiful day to fight cancer” and they were all there for me. For Dan.
Our pastor and friend came to pray with us and that was when the tears started to fall. Being told I was strong when I did not feel strong anymore, that I could do this but I did not know what this meant anymore, that I “had” this but I decided I no longer wanted it was running conflictedly through my head.
I suddenly wanted to brace myself for avoidance of this suffering because the bravado of embracing it had finally worn off.
I no longer felt strong or confident. I felt weak and exposed. I felt vulnerable and unprotected. I had been so close to the tree for protection from the scorching heat but now felt alone. Utterly alone. My mind was devoid of thoughts and scripture.
To the words of “He is with you”, I was taken to the operating room.
I looked and couldn’t find Him.
I felt myself frantically looking all over the room and not finding the peace I was searching for. I gripped the table and felt my whole body tense up with my knees bent even though I was given plenty of medication to relax me.
I couldn’t breathe and started to cry. I wanted this over. I wanted Dan. Did he know I loved him?? Did he get lost in the shuffle because of his humble willingness to step aside and let others give love and support to me? Was he ok? Would he be ok??
My surgical team kept reassuring me, reminding me I was not alone, to go where I knew I would find comfort…
I begged God to show me where He was… to bring His Word to my mind in my panic….
I felt my brain quickly flipping through endless pages of thoughts without an ability to land on anything. My desperation increased and my surgical team could sense it.
Finally, my brain settled on one thing: a song lyric~
Blessed be Your name when I’m found in the desert place, though I walk through the wilderness, blessed be Your name…On the road marked with suffering, though there is pain in the offering, blessed be Your name (Matt Redmond)
Of all lyrics…
On the road marked with suffering, still I will say, blessed be Your name…
You can’t make this stuff up. That’s like verses 2 and 3: who immediately goes to the 2nd verse when you think of a song? Most of us remember the chorus (that’s not it) or the 1st verse (also not it). My brain went to the second and 3rd verses…blessed be Your name.
I legit remember nothing but that lyric until I woke up in the PACU.
The surgery went as expected: blessed be the name of the Lord.
The cancer was successfully removed: blessed be the name of the Lord!
The nerve block anesthesia provided was keeping me from pain: blessed be the name of the Lord.
The mixture of medication given to me by the CRNA kept me free from nausea: blessed be the name of the Lord.
My family and friends put in one heck of day in that waiting room as my surgery took close to 8 hours. They all came to see me (quickly) as I was settled into my inpatient room for the night before they felt comfortable to leave me in the very capable hands of Dan and Garrie (and the nursing staff, of course).
Dan left for the night and I was alone again…this time knowing I really wasn’t.
In the morning, the surgeons were pleased with my initial recovery process so Dan took me home that afternoon with strict instructions to let me (make me) take it easy… no lifting anything, take my pain medication, no showering, rest, rest, rest.
This is my current schedule:
The anticipation is over. The surgery is completed. The cancer is gone. The recovery has started with all that it entails… pain management, movement for activity, body image issues, emotional adjustments, drain maintenance, doctor appointments…
It’s a lot.
Psalm 88
O, Lord, the God of my salvation, I have cried out {for help} by day and in the night before You. Let my prayer come before You and enter into Your presence; incline Your ear to my cry! For my soul is full of troubles… I am like a man who has no strength, cast away from the living…You have laid me in the lowest pit, in dark places, in the depths… But I have cried out to You, O Lord, for help; and in the morning my prayer will come to You…
I was getting a latte today when a man approached me. His excitement was radiating off of him: he had news he needed to share even though it meant sharing with a complete stranger.
He found a good deal on a new truck and even showed me a picture of it as I waited in line to place my order.
As he talked about the truck, he said he was in disbelief over the wonder of it all and the timing of finding it:
he told me that he had been at a Bible study the night before. While there, he was prayed over regarding his need for a new vehicle.
He found the truck this morning; the very next day.
What really surprised him was the color of the truck: it was a mocha brown, I guess. He told me his last car, a Chevy Malibu, had been the same color when it was “taken” from him, and here is our Lord replacing his vehicle with one of the same color.
I couldn’t help but comment to him on how pretty I thought the truck was, affirmed that a Chevy Silvarado is a great truck, and that our God sure is good.
We serve a King who pays attention to the small details of life.
But now, THIS is what the Lord says- He who created you, He who formed you:
“Do not fear, for I have redeemed you. I have called you by name and YOU ARE MINE.
WHEN you pass through the waters, I will be with you.
WHEN you pass through the rivers, they will not sweep over you.
WHEN you walk through the fire, you will not be burned; the flames will not set you ablaze.
For I am the Lord your God…”
Isaiah 43:1-3
How often do I boldy give praise for what the Lord has done as that man in the coffee shop did?
Psalm 89:1
I will sing of the goodness and lovingkindness of the Lord forever! With my mouth, I will make known Your faithfulness from generation to generation.
The truth is this: probably not often enough. It’s so easy to see what is wrong or what feels bad or what is scary or hurtful. Those negative emotions all too often shade the beautiful colors still represented in this life that we continue to live each and every day.
I was told recently that when we find ourselves walking in the valley of the shadow of death, we forget that it is only a shadow.
That means the sun is still shining: we need light to make a shadow.
Are we seeking that source of light??? Or keeping our focus on the valley? On the shadow?
Through this journey of breast cancer, I have mentioned my concerns regarding my underlying diagnosis of Crohn’s Disease.
It’s time to talk about that. If you thought I was getting personal before…. this factor takes me to a whole other level of intimacy and is not one I find easy to share.
In 2018, the disease I knew and had been treated for since I was the age of 14 changed. Most likely, from all the years of inflammation in my colon, a fistula developed that caused an abscess.
I’ll spare the details but will say it was incredibly painful and I became very ill. A brand new course of treatment was suddenly required: an IV infusion that would suppress my immune system (on purpose) in order to stop my auto-immune system from going into overdrive.
Basically, I can’t heal if my auto-immune system is fighting my immune system all the time. It’s a rather ironic situation: make me immuno-suppressed so I don’t get sick, but being immuno-suppressed can make me susceptible to illness more easily.
Talk about living in tension.
The treatment has been very effective for my Crohn’s management. The colon inflammation went away, and my GI system is in the best shape I’ve ever known I could experience, but I still have the fistula.
Apparently, that’s a little bugger to heal.
On New Years Eve 2024, I had an MRI just to see what that fistula has been up to since 2018.
I had no real issues going on, so it was fairly “random” that my trusted GI PA wanted to look under rocks for me. As he said, “Amy, you are getting by- and that’s OK. But I want you to thrive.”
May we all be blessed with a medical team that desires us to THRIVE.
Per the MRI, much to his surprise (and mine as well), there was another abscess present. I had zero discomfort or awareness it was there, so the decision was made for me to go on a HUGE antibiotic dose for 3 weeks.
I was terrified because I’ve experienced what antibiotics can do to an immuno-suppressed system: it can completely wipe out all the good, natural flora which could cause my system to be susceptible to a different bacteria.
It’s not a fun thing to go through.
I trusted my medical team and took a deep breath: we went for it.
My life is in the Lord’s hands, I thought to myself. I believed this was found though His grace and timing. I chose to trust that God would carry me through whatever was going to happen next.
I was finishing those antibiotics (without one single issue of concern to speak of!!) when I was diagnosed with the breast cancer.
That’s why Crohn’s was on the forefront of my mind at the time of the diagnosis. You see, I call my Crohn’s The Dragon. She often sleeps… but when she wakes up, LOOK OUT! I believed she was resting, but not sound asleep so I don’t want to wake her.
We must tread lightly.
As my previous posts have shared, I’m under some stress. I’m feeling the strain of this diagnosis. I’m feeling the weight of the uncertainties. My emotions are all over the board. My anxiety ambushes me. Depression washes over me.
That Scripture from Isaiah rings LOUD. The rivers are flowing hard and deep with a fast current. The fire is H-O-T.
Trying to remember what the Lord promised me and not be afraid feels like a losing battle.
I was settling into the idea that my surgical date had been set for April 16…over a month away. I was looking for the positives in the timeline that had been set for me and leaned into them.
My friend told me I had been given a gift of time to optimize my health. He reminded me that I had over 4 weeks to get my body “ready” to have and recover from a big surgery.
Taking his advice, I turned to yoga for stretching and strengthening while increasing my protein intake.
I decided to be productive in the waiting.
On March 6, I noticed that I was more tired than usual after work, but I wasn’t too concerned about it. I wasn’t going to analyze it. So, I took a nap after work and determined to still do my exercises.
As I shifted into the sit- stretch positions of yoga, I noticed a discomfort that had not been there the day before. I tried to convince myself, “This is normal,” and that “I’m ok, don’t worry.”
I opted not to speak a word to Dan about it. I determined it was all in my head. I convinced myself (but not really) that a discomfort when sitting is “totally normal.”
FYI: That is what most auto-immune patients are convinced of. We believe what we feel is all in our heads. It is not real. Somewhere, along the line, we must have been told this, and that is why our diseases run rampant: we don’t speak up for fear of judgment.
The next morning, I did not want to get out of bed. If I did, I would have to determine whether what I suspected was going was real or not. My instinct told me, though, that the previously discovered and somewhat treated abscess had surfaced.
The longer I lingered, the longer I could stay in denial.
I do not want to deal with my Crohn’s right now. I don’t want to face a return oflife with anabscess. Don’t I have enough going on, Lord?? This doesn’t seem fair.
Then the doubts surfaced quickly: What if they don’t believe me when I call my medical team? What if I’m wrong and sound the alarm for no reason? What if I’m what I’m afraid of being: dramatic???
That’s when the phone rang. Answering it, I find that it is my breast surgeon’s office. They have had a cancelation. Would I want to move my surgery date up to that coming Wednesday? In 5 days.
Are you kidding me?!
The absolute absurdity that I am being offered the chance to have this flipping cancer that haunts my dreams and stunts my reality cut out of me sooner has been laid on the table before me….and I think I have a Crohn’s fistula abscess.
Are you kidding me.
The woman calling did not ask me if I was healthy or having any medical problems. I had told NO ONE that this was even happening.
No one knew.
No one asked.
No one had to know?
But I knew. And I knew this could be bad if I ignored it. I knew the surgery recovery could have complications if I had an active infection but did not disclose it.
Are you kidding me.
I needed time to think.
I couldn’t breathe all of a sudden because I knew what I had to do, and that was to choose to keep the cancer so I could deal with The Dragon.
How do I say that out loud??
I want this cancer gone!! Every single minute it sits inside me feels like it is taking time off my life. I feel it burning inside of me. It aches. Is it growing? Is it spreading? Is it reaching my lymph nodes???
I knew beyond a shadow of a doubt what I needed to do: take a deep breath and trust in the Lord.
Dear God,
The waters are rising!! I can’t catch my breath! You said they would not overwhelm me, but I’m scared and can’t breathe. You said the fire wouldn’t scorch me, but it is hot. It is so hot it hurts. Help me, help me, help me do what I know is right. Help me not respond in fear and make a choice that will harm me. Help me to say “no.”
I told the breast surgeon’s office “no” and immediately called my colo-rectal surgeon. He ordered me antibiotics (again) and an appointment was made to see him in 6 days.
Instead of breast surgery in 5 days, I would see a colo- rectal surgeon in 6. Talk about a few degrees south from where I wished we would be addressing.
The discouragement I felt is hard to describe. Maybe the best way is to envision that valley of the shadow of death.
The shadow was dark and heavy. The tears were hot and many.
A new fear surfaced: Could this impact that?? Is there enough time to get my infection under control before Aril 16?
Back to the land of the unknown.
I made it through the week with the antibiotics doing their good work, but now my anxiety feared the abscess would go dormant while appearing to be absolved because it had slithered back under the surface.
What would my colo- rectal surgeon say if I’m no longer having discomfort? Would that be a good thing? Or would it surface again right before April 16 to cause a major delay???
By the time I arrived to his office, I had myself nicely all worked up. The tears started in the car before entering the building. The hyperventilating came when the MA asked her pre-appointment questions.
My poor doctor. I feel bad for him and what he walked into when he came into the room as I was barely holding it together.
After an up-close-and -personal exam (done professionally and with a chaperone present), he asked what I was doing the next day. I told him I was supposed to work. He said ,”Not anymore. I’ve had a cancelation. We’re going to take care of this tomorrow at noon in the operating room.”
Now HE has a cancelation?
One space opened for me, and I have to say no to it and now one I have to to say yes to.
This “yes” hurts. I felt like I had stepped back in time to 2018 when all this started… all the trauma that experience caused surfaced. All the fear from this disease that will not release me from itstalons exploded in my chest.
I asked him, “What is happening? Why?? We treated this with antibiotics for 3 weeks and now it surfaces??? It makes no sense.”
I sat there and cried as he looked at me. He sighed heavily as he sat there.
Then he said, “It’s this. All this” as he made a motion over me to indicate my emotions. He said, “This is stress.”
Great.
Stress. A stress I can not escape from.
Am I NOT coping well? Is there a way to do better? To be better at this?
If those aren’t the words I’ve asked myself my whole life…
As if to say, “What’s wrong with me? Tell me and I’ll fix it.”
Well, I can’t.
I’ve never had cancer before, so I don’t know how to do this any differently than how I am.
Maybe that’s why I’m writing all this. I don’t know. I fear some may think it is for attention. I fear what I’m going through may not matter. But I’ve got so much whirling around in my head that I don’t know what to do with it, so I write.
My insecurities say, “What you have to say doesn’t matter. Why blog it when a journal is more than adequate? “
I want to praise Him in the storm.
I want to bless His name on this road marked with suffering, though there is pain in the offering.
I want accountability that I am living what I teach and what I preach through how I live.
Psalm 71:17-18
Since my youth, God, you have taught me, and to this day I declare your marvelous deeds. Even when I am old and gray, do not forsake me, my God, till I declare your power to the next generation, Your mighty acts to all who are to come.
Dan and I head to the hospital the next day to have the abscess surgically drained.
As a side note, it is important to understand that I work at this hospital and know a lot of people in the OR.A lot. This particular procedure is personal and intimate and embarrassing for me, so to have people I know involved is difficult. I manage these encounters as best as I can, but it is with great difficulty.
Strangely enough, I was calm this time. I was not crying. I had submitted to what was happening and my lack of control in it or around it. What would happen from this point on was not up to me.
I chose to trust the Lord with all of it and felt His peace as it came over me.
The Lord blessed me that day with a gift of anonymity. Other than my surgeon, I did not know any of the others who participated in my care that day. Not one other person. Not one.
I am amazed by His grace that continues to cover me through chance encounters with my medical team, specific awareness of my own body from past experiences, cancelations to make room for me, and now respite from the extra kindness that would have been shown to me because they were my peers.
All I had to be that day was the patient, and it was marvelous.
When my surgeon talked to my husband afterward, he said he had “run into” my plastic surgeon at the completion of my case. He was given a divine opportunity to hand my concerns of this situation compicating that surgery over to the next surgeon to be involved.
How amazing is that?
That is called GRACE
Amazing grace, how sweet the sound…
How amazing is it to know we serve a King who pays attention to the small details of life?
The aftermath of that surgery did leave me as an emotional wreck- I can’t lie about that. Knowing the goodness of God doesn’t eliminate how badly I dislike my situation.
I went into hiding for a few days for my emotions to recover as my body healed.
I met with the PA from the plastic surgeon’s office next for my official pre-op appointment. While there, she verbalized significant concern over me receiving my next scheduled infusion for my Crohn’s since it was so close to my surgical date.
As I said, my medication keeps my immune system suppressed, so healing is difficult. I kind of need to be able to heal from this double mastectomy and reconstruction surgery.
The surgeons have legit concerns.
So do I.
The mere thought of not taking my medication that keeps The Dragon somewhat tame is horrifying to me. What would happen to my auto-immune system if we allow my immune system to wake up when this abscess has already created a little stir while taking it??
This decision is out of my control.
Here is the thing: do I trust the Lord with all of my health or do I trust the medication?
Do I trust the Lord with all of my life or just the bits I turn over to Him?
I have taken wobbly steps of faith in my trust walk with Him this far….He has not failed me, left me alone, or left me without solutions and options. He has shown me the well in the wilderness.
He has told me that He has redeemed me. He has called me by name. He has said, “you are Mine.“
Submit and accept. This is what I am called to do. Do not worry and fret, but submit and accept. Do not complain, but praise.
My dear friend gave me a card with some great advice on it~
So I did.
I accepted that I may go without my Crohn’s treatment for 3 months. Whatever happened from doing that, we would deal with. I have a good team surrounding me. I am in good hands.
The Lord is my Great Physician.
The surgeon’s office called with the verdict: they decided it was for the best that I stay on my treatment plan!!
The PRAISE THE LORD escaped my mouth as I stood in a procedure room full of doctors, nurse, and anesthesia staff while on the phone!
Psalm 27:13
I remain confident of this; I will see the goodness of the Lord while I am here in the land of the living.
The relief was palpable. My response to the relief was physical as tears escaped my eyes unashamedly.
The course has been set. The Captain is at the helm. The crew have been readied. Prepare the sails because we are steering toward this mastectomy now.
I mean, there is worry – which is one thing – but then there is anxiety.
Trust me, I have done my fair share of worrying: I raised two boys so that is reason enough right there! I’ve worried over what we would do when Dan’s job was unexpectedly downsized leaving him unemployed. I’ve worried over silly things like what to wear to an event, would we be on time or late to an appointment, who would I sit next to when I have to be somewhere.
But anxiety? That’s a different beast.
Those worries can turn into anxiety for sure, but on their own they come and go as quick as the time passes.
Anxiety grips you. Holds you hostage. Clings tightly. Digs in deep.
Worry can be somewhat rational….”I’m worried about what the diagnosis will be”; “I’m worried if the person I love will be ok”; “I’m worried about missing out on something because I might be late.”
Anxiety… takes whatever I’m worried about and twists it into something so much more. I am not trying to do this intentionally, it is something my brain does for me all on its own. Isn’t that special?
Some people, my husband for example, does not have anxiety. Does he worry? Yes. Does he get anxious about what worries him? No. My oldest son seems to be just like him.
I find that strange.
I, on the other hand, have struggled with anxiety for most of my life. I almost wonder if it is something that arises from deep within me when I do not acknowledge what I am worried about, do not feel validated in what I am worried about, or cannot seem to work through what I am worried about.
Whatever it is, it is my worries MAGNIFIED.
I remember having bad dreams as a kid and wandering the house in the night unable to separate myself from that dream. I remember it so that must mean I was awake, but I also remember feeling trapped in it at the same time as if I was partially asleep. I could not settle. I could not relax. I did not feel “safe” even though I was safe inside my home.
I would go upstairs to my parents bedroom and try to settle into a “nest” built on the floor for the dog, but it was not “enough” to calm me or to stop the feeling of being “trapped in the dream.”
As an adult, I can now recognize that I was having a panic attack.
Unbeknownst to my brother, who was my arch nemesis at the time, I finally crawled onto the foot of his bed and curled up. It was there in the (if you have a brother then you understand, but to my brother this is no way disparaging of you as an adult!!!) grossness of his teenage bedroom by his yuck boy feet that I could feel secure again to be able to return to my own room and sleep once more.
I remember doing that more than once.
I also remember waking up in the middle of the night and scaring my parents half to death because I swore I could not breathe. I think my mom was on the cusp of taking me to the Emergency Room when I was finally able to settle down.
As I got older, the expressions of anxiety changed: insomnia continued, restlessness increased, inability to focus, a roaring in my ears, stomach “butterflies”, consuming thoughts while jumping from topic to topic.
It’s fun stuff.
Where did it all start? Why?
Who knows. Maybe there was a reason- it would be nice to “blame” it on some event I suppose. Or, as we now have discovered through science, maybe it just IS. A true medical diagnosis of anxiety that I have not been officially diagnosed with.
In 2014, I had the best time ever going to a Beth Moore conference with some friends and my mother. It was a chance of a lifetime to go and I am so glad we jumped at that chance! If you don’t know her- she is a dynamo of a speaker! An authentic woman of God. An incredible author too!
Anyway, at that conference, at the end, there was this time for prayer and reflection. In that time, I remember someone praying specifically for the chains of anxiety to be dropped; for those bonds that feel like they are holding a person prisoner, to be released.
I felt the release.
Does anxiety still beckon to me? Yes.
Does anxiety still cross my threshold into my home, into my mind? Yes.
Does it rule me? No.
Does it define me? No.
Do I still struggle with the temptation for it to consume me? Yes.
It’s a battle. In some seasons, it feels like an all out war, but I do feel free from its grip on me.
I’ve gone to counseling over the years when my personal coping choices were not effective due to the extreme circumstances I found myself in. I’ve changed many of those coping choices over the years, as well, when I realized what was helping or hurting me.
Well, let me tell you…. once again I can honestly say that I am struggling.
Hello, anxiety, my old friend….I’ve been freed from its chains but it still likes to try to take hold of me.
I made the decision to have the bilateral mastectomy and braced myself for the “comments” that may come my way once I announced my treatment plan.
I worried about what others would say, but I was anxious about what decision to make. See the difference?
There is an interesting detail that still remained: the MRI my surgeon still wanted me to have.
I met with the plastic surgeon on a Tuesday, and he went over what surgery would look like as well as the recovery plan. I handled a silicon breast implant as if it were a stress ball throughout that whole appointment.
Remember when I talked about all those choices we make in a day and how overwhelming more choices were to me? Well, who KNEW that there would still be more choices included even when I made a decision for the mastectomy~
*what kind of implant: saline, silicon, my own tissue?
*nipple or no nipple?
*tattoo nipple?
I never realized how modest I was until I started having health problems…These are crazy conversations to have with a stranger!
When I left that appointment, needless to say, I was overwhelmed and emotional. My anxiety had once again surfaced and the roaring in my ears was present. As I approached the elevator I saw a familiar face: one of the doctors I work with on a regular basis. I did not realize that he was a part of that specific medical group and was not prepared to make casual conversation so I made myself small and quiet: he never saw me standing there.
The next day I went in for the breast MRI.
At this point of the journey, I have had 2 mammograms (naked breasts squished in a machine with the tech standing right there “woman-handling” my breasts to obtain the best imaging views). I had 2 breast ultrasounds: one with the female ultrasound tech waving her lubed up wand over my breast and the second with a doctor joining her to do the same. I next had the biopsy, which was another ultrasound with my breast exposed and cleaned, and a doctor- with the tech- performing the ultrasound guided needle biopsy. I sat through an appointment with my “team” of physicians where 2 of the 3 doctors did a breast exam in front of my husband. Finally, I met with the plastic surgeon where another exam was completed, measurements were taken, and photographs were done all with the nurse present to assist the physician.
Everything and everyone have been incredibly professional. It is just a body part. I am a nurse and I know this. But it is personal to me.
Now it is time for the breast MRI. Are you kidding me with this one??? Top off, lay on your stomach and let your breasts dangle through a hole with my arms over my head.
Are you comfortable, Amy? Never better.
Oh my gosh. I am not ok.
It’s over in about a half hour and home I go with whatever dignity is left.
The next morning I woke up to the “My Chart” app alerting me to the findings from the MRI. They were a little confusing to me so I was pleased that the Nurse Navigator from my team called me within a few short hours:
“Did you see the MRI results?”
Yes. “We are concerned that there were more spots on your left breast found. If a lumpectomy is planned, we will need to do more biopsies for sure. There is also a “spot” on your right breast. We “think” it looks benign, but that will need to be monitored every year from here on out depending on your treatment plan. We need to make some decisions quickly.”
(I’m at work in the middle of a procedure when this call came through.)
I am planning to have a bilateral mastectomy and met with the plastic surgeon Tuesday to discuss that as my plan. This MRI confirms that my decision is the correct one for me.
MORE spots? Are you kidding me?
I can’t have this surgery fast enough.
Do you know when that surgery will be scheduled?
“No, but I will tell your surgeon what we have discussed and it should be scheduled soon.”
Soon is a funny word, isn’t it? When exactly is something “soon”?? Tomorrow? Next week? Later today? In a month?
I take a deep breath as I hang up the phone and get back to my assignment at hand: my job as a procedural nurse. Back to business.
That same week, on Friday, I have a big thing to do for myself. It may not seem like a big deal for others, but this was huge for me.
My breast cancer is “hormone positive” which means that hormones “feed” it. I’ve been on one form of birth control or another since I was 18 years old. For about 8 years I took “the pill” and then I was introduced to an IUD.
Was it the birth control pill that caused all this? It is hard to say, but taking it definitely increased my risk factor for breast cancer.
My youngest child is a precious 19 years old. He was born in 2005. That means I have had this IUD as a birth control option for 19 years. I was told that my IUD could “carry me through menopause” nicely. It could diminish the side effects many women experience as they become menopausal. In 19 years, thanks to my IUD, I have not even had a menstrual cycle. No period. No cramps. No cravings. No obvious PMS symptoms.
For 19 years.
I was told it needed to come out. Yes, the hormone it releases is not one that feeds my tumor, but it is still best to not have any hormones be fed into my body anymore.
So on the same week that I met with the plastic surgeon and had the MRI, I now get up close and personal with my OB to have the IUD removed.
I cannot even begin to describe how vulnerable and exposed I am feeling these days. My body has become something more public than I would prefer it to be and it makes me incredibly uncomfortable. Is it all medically necessary? Yes. Has everyone been professional about all they have done? 100% YES.
Yet, I still feel raw just the same.
My OB calls me as I am driving to office because she does not know why I am having the IUD removed and wants to inform me that the “exchange of it for another” is not required for another year. She is being kind in trying to prevent me from an unnecessary appointment.
I inform her that I need to have it out because I have been diagnosed with breast cancer. She is immediately empathetic and says she will see me soon in the office.
My nerves are shot by the time I get there.
Here is the thing: I have had many appointments through all this. I’ve been told where to go, where to stand, where to park, when to arrive, what to wear all so something can be done to me.
THIS is something I have to do myself for myself. This is something that is going to change many things about me. My husband and I are fairly young: birth control is suddenly a new issue to deal with as we enter our 50’s. I will probably have periods again and all that goes along with it each month. They may be regular or irregular in their cycle, heavy or light. We don’t know.
And I will definitely being going through and feeling ALL of menopause.
I have to do it. This life change must happen for me to move forward as a breast cancer patient.
The tears start falling as soon as the doctor enters the room. I explain my situation as she compassionately listens. She gets it. She even asks if I want to take the IUD home so I can bury it (I declined that offer in case you wondered!).
She understands that in this one simple act, I have begun to grieve the life that I once knew, the future that I had believed would come.
I have breast cancer and life is going to be different because of it.
ANXIETY hit when I walked out of that office that day. It hit HARD. It hit fast and heavy. I got in the car and cried a million tears before I could even think of driving. I could not figure out what to do next as I sat there in the parking lot.
I was not worrying… I was anxious.
Anxiety won’t let me make a decision. It tells me that the choice to get a coffee from this Starbucks or that one is as big a deal as should I have open heart surgery soon or not. I cannot think clearly or hear my thoughts that should instinctively guide me toward my next natural step.
It freezes me in a moment of “do I go in or do I stay out?”
When Troy was a baby, he was born with a club foot. During my maternity leave, I had to take him weekly to the pediatric orthopedic surgeon’s office where she would wrap his little leg in a stiff yet pliable cast to gently turn his little leg outward. The goal was to increase the length of the ligaments on the inside of his leg and to tighten up the length of those on the outside of his leg (the Ponseti method). After that stage of treatment was completed, he needed to have his Achille’s tendon released surgically at the age of 3 months: a hard plaster cast was put on him for a month or 2. When that was removed, he had to wear special shoes that would attach to a bar to hold his legs apart as well as to keep turning the right foot outward with the shoe holding his foot more flat.
It was at this that I realized that I was having some serious emotional issues with what was going on with him. Over the early months of his life I seemed to handle most things alright. However, I needed to get this “normal” shoe that would go with his orthopedic shoe to fit into this bar (Denis Browne splint). I was to look for the classic baby shoe: white leather with laces.
I went to the mall so I could go to the Payless Shoe Store (did I just date myself??). I remember standing outside the store and would take a step toward it and then back away. I did this for quite a while. I could not go in, but I could not walk away either. Back and forth. Do I go in?Do I go in?Do I go in? I could not make the decision. I could not breathe either and it felt like the weight of the world was suddenly sitting on my chest.
Anxiety at its finest.
21 years later and I am just as frozen. Crippled by it.
Through my years of grief counseling, I have gained some wisdom. One refrain entered my head: do the next thing. If you don’t know what to do, just do the next thing. It does not matter what it is, just do it. Then do what is next after that.
I started with turning my car on and continuing to deep breathe. I chose the closest Starbucks and treated myself to a hot latte made with oat milk (it changes the latte game, I’m telling you!). I chose my next step from there and gradually made it through the day.
I believe I did some therapeutic shopping that day and bought fancy recovery jammies with buttons as well as new lounge wear as if I’ll be some idle queen laying on her chaise lounge enjoying the companionship of those around me instead of recovering from having my body surgically altered because I have to instead of doing it because I want to.
The day ends and I notice that I am without word of a surgical date. I can now assume it will not be the next week but cannot guarantee any secure future plans I’ve committed to for the weeks to come. We look at our calendars and try to determine how to plan Dan’s work-travel as well as my speaking engagements I have looked forward to. It was stressful because we knew we needed to cancel our plans at any minute.
The weekend passes as we tell people, “we don’t know yet” when they inquire frequently and with compassion.
The unknown is so hard. Hard to plan for. Hard to stay present in the moment. The weight of not knowing settles on me uncomfortably. I do not want to harass my doctors office with phone calls. I do not want to try to micro manage this situation – which has only proven to make me more anxious in the past and I’m already intense as it is.
The waiting means I continue to walk around with potentially growing cancer inside of me.
I want to TRUST. I want to believe that God is IN this still. Trust that I will not fall through any cracks in the system. Trust that God’s word to me is true that I will NOT be overwhelmed or consumed by the waters and fire that threaten me.
I decided to give the office until Tuesday before I would call them. By Tuesday it would have been a week since I was seen in the office with the plastic surgeon and the decision to have the mastectomy was made.
Remember that surgeon I saw by the elevator that I hid from?
When I got to work on Monday, there he was in my break room. For this to be truly understood, you have to know that I work 2 days a week. These two days vary from week to week as I do not have a consistent schedule at all. Also, I work with many different doctors as they all have different schedules too. I can see the same one each week, but another only once a month.
That is the case with this particular surgeon: I do not work with him too much. I work with enough to know him and for him to know me, but I am not scheduled to be in his room each time he is in our unit. It’s just how our schedules go there.
But here he is in my breakroom at 0800.
A co-worker of mine is there as well and asks me the infamous question: do you have a date yet??
I said no and then looked at the doctor. She sees me look at him and asks, “could he help?”
He asks, “with what?”
I inform him that I have breast cancer and that surgeons in his office will be doing my surgery but I have not received a surgical date yet and that is making me more and more anxious about all of it. Could he help me to get it scheduled in some way??
In that moment I remember that his sister had been treated for breast cancer so he is even more empathetic than the usual person I inform of my situation.
God has put the right person in the right place at the right time for me.
He immediately agrees to help and within minutes, I was told, he was on the phone with his office manager.
In that moment the relief I felt was palpable when I could still see the hand of God working in my situation. He had not left me alone in my anxiety -even if I could not feel Him directly there.
I was promised that He would be right here and here He was.
Before lunchtime that day I received the call from the surgeons office that I had been waiting for and my surgery is officially scheduled.
April 16, 2025 at 0900 I will be having a bilateral mastectomy.
The pressure eased a little that day. The anxiety subsided somewhat as my trust in the Lord was strengthened. I was, and am, thankful for God’s continued provision.
I am going to need that reminder for the days to come.
The wilderness themes in the Bible seem to call out to me lately, especially those where people have been “led” or “sent”.
The story of Hagar stands out in many ways.
It is in Genesis 16 where we first meet her: she becomes an unwilling participant in the plan for Sarai and Abram to fulfill for themselves the destiny God had prophesied to them about: that their descendants would outnumber the sand on the seashore. This is a tricky thing when they did not have even one piece of sand to call their own, let alone numbers to fill a beach front.
Hagar did not have a say whether she wanted to play a role in their meddling. She had no choice as she was a voiceless female servant.
She became pregnant with Abram’s first born child, but ran away due to the toxic relationship that had formed thanks to this “love” triangle that never should have been. It was there in the wilderness that she was approached by God with words of comfort and where she named Him: El Roi – The God Who Sees Me.
Later, after Isaac had been born to Sarah and Abraham when Hagar’s son Ishmael was 14 years old, Sarah decided she wanted Hagar and Ishmael to leave their homestead forever.
Early the next morning Abraham took some food and a skin of water and gave them to Hagar. He set them on her shoulders and then sent her off with the boy. She went on her way and wandered in the Desert of Beersheba.
Genesis 21:14
Once again in the wilderness, God approached this woman whose life was not of her own choosing. He tells her not to be afraid, He comforts her and tells her to give comfort to her child, and He refreshes her with water from a well she had not previously seen.
This past fall I was invited to attend a retreat for women pastors. The invitation to attend came within moments of my response to the Lord calling me to NOURISH my relationship with Him.
The definition of the word “nourish” is to be provided with the food or other substances necessary for growth, health, and good condition.
After a long season of grief I found myself lacking what was necessary for any of those things. What I felt instead was stagnant… unfocused…anxious…unmotivated…
I felt all this physically but realized it was stemming from inside my emotional self and had carried over into my spiritual self.
Choosing to spend time alone with the Lord revealed the need for spiritual nourishment. That was when the email came inviting me to a “retreat.” Talk about divine timing!
The theme -shockingly enough- was “KNOWN” and the emphasis was on God the El Roi: the One Who Sees Me.
At this retreat, I had a personal encounter with El Roi and had the confirmation placed on my heart by Him that I am loved by Him. Fiercely loved. The healing that came through that revelation provided what I had been malnourished of: what is necessary for growth, health, and good condition.
A reset button had been pushed and I was being restored.
I came home from that retreat more at peace with myself than I knew I had needed to be. I felt focused and driven to again pursue the desires that the Lord had put on my heart when He called me to be a pastor: one who shares the Good News.
So imagine the irony I feel now.
I am called to preach the Gospel. I WANT to preach it. I have opportunities to be able to do so once again. I have the time. Life seems to be falling into place.
Except.
I have cancer.
The first time I went into the wilderness where I felt malnourished, I think was kind of similar to Hagar; it was my choice to go due to the circumstances. I may not have known consciously that was what I was doing in my grief but it was in the wilderness where I ended up just the same.
And God saw me there. El Roi. I am loved.
And now? I feel like a bag has been put on my back and I am beingsent from the comfort I have known, the plans I had made. I am to go somewhere unknown, uncertain, uncomfortable, scary.
And yet I am still seen. I am still loved.
The diagnosis has been confirmed: Stage 1 Invasive Ductal Carcinoma. The appointment has been set up with the team of physicians that will help me with the necessary decisions that need to be made for treatment.
We tell my parents what is going on.
We tell our children what is going on.
We tell my brother what is going on.
We tell our closest friends what is going on.
We try to breathe.
It isn’t easy to tell those you love that you have breast cancer. But do you know what makes it worse? Once they know, life goes on. People go back to work or to school. Meals need to be made. Other people we love are going through really really excruciatingly hard things at the exact same time as this and beautiful babies are being born as well.
So here I am walking around with cancer inside of me and if I did not tell you, you would never even know. It’s not like I look any different.
But everything feels different.
I cannot express how surreal that feels. How ominous.
One minute I’m pulling laundry out of the dryer and the next moment it is like I have been punched in the gut with the thought, “Oh my gosh I have cancer” sweeping over me.
Telling people makes it more real.
But I do not want it to be real.
The “big” doctor appointment introduces us to a radiation oncologist, a breast surgeon, and a medical oncologist. They all assess me individually and look over my biopsy report. Later, they meet together with the pathologist who confirms my diagnostic findings. We meet with the breast surgeon a second time for the conclusion of our day.
I am supposed to make a decision at this point regarding the treatment that I want to have based on the options presented to me. I had no idea there would be OPTIONS.
Supposedly, we make around 35,000 conscious decisions in one day: what we will eat, wear, say, etc…
35,000.
I was given about 5-6 options to choose between at the conclusion of this appointment. It felt like 4-5 too many.
I must say this though: I am incredibly grateful for the women who have gone before me that had to FIGHT for the right to even have these choices.
It is hard to believe there was a time where a woman did not have the voice or the choice to say what happened to her body once breast cancer was detected.
I have to live with this body for the rest of my life so I am thankful to be able to have a say in HOW IT LOOKS WHEN ALL THIS IS OVER.
Lumpectomy with radiation
Single mastectomy and no radiation
Single mastectomy with or without augmentation
Single mastectomy with augmentation to the unaffected breast as well as one with cancer
Double mastectomy and no radiation with or without augmentation
As of now it does not appear that I will need chemotherapy because no lymph nodes are affected.
I sat there staring at the surgeon who was looking at me with an extreme amount of kindness on her face…as she waited for my response.
I could not breathe. I could not think. I could not choose.
I began to cry and said, “I don’t know what to do. I just don’t know.”
She gave me the opportunity to think on it and made an appointment with a plastic surgeon for me as well as scheduled an MRI to look more into what was happening in my breasts. She said, “the MRI will help you to know what to do. It’s ok that you don’t right now; we have time.”
When you have been told you have cancer, I can honestly say this, TIME is one thing you no longer feel you have.
At the conclusion of this appointment, our support system was hoping for a “plan” to have been made and now I have to tell them we are still trying to determine what is the best thing to do for me.
I feel an incredible amount of pressure to make a decision. To make the RIGHT decision. To make it soon.
But what is “right” for ME?
If you’re new to my blog, you may be unfamiliar with my other “invisible” illness: I have Crohn’s disease. It is an autoimmune disease that affects my GI tract as well as the rest of me systemically. I am on medication that suppresses my immune system in order to keep my autoimmune system from going into overdrive. When my medication is not at its appropriate blood level, the fatigue I feel is unbearable and irritable bowel symptoms arise.
Frankly, Crohn’s is the banner to which I would like to march under as it is the dragon I have come to know and NOT Breast Cancer… but, alas~ I guess I have to carry two banners now.
Here’s the thing: I WILL recover from breast cancer, but I will always LIVE with Crohn’s Disease. Whatever I do with this cancer is going to affect my autoimmune system…and I cannot get that thought out of my head no matter how hard I try.
I am a woman with Crohn’s disease that will have to endure whatever choice of treatment I decide on.
Can my immunosuppressed body fight left over or new cancer cells if I do not choose a mastectomy or do not choose radiation?
As I was told by a trusted source, I am not in the statistics for the efficacy of treatment for breast cancer. I am not one they included in the tests and trials. I am in the “unknown” category of how I will respond and what role my Crohn’s medication may have had on this or could have on this in the future.
I am a Crohn’s patient that now has breast cancer and that cannot be ignored or forgotten or push aside or minimized.
I have TWO active diseases now.
Now enter in my “people pleasing” problem.
This one really ticks me off!
I cannot believe how much I worry about what other people think… I worry so much about judgment that I found it difficult to make a choice for MYSELF and MY body without fear of “doing it wrong.”
Wrong for who??
A bilateral mastectomy is considered “radical.” Did you know that? The thing is it means it is a radical surgical procedure that involves the removal of the entire breast, including the nipple, areola, skin, and underlying chest muscles and it is performed to treat breast cancer.
Yet, the word “radical” (especially in view of this context) is more defined as “very different from the usual or traditional; extreme.”
A bilateral mastectomy seems radical to some when they hear “Stage 1 cancer”. That it is an extreme treatment. That is is different from the usual.
The fear of judgement from others was IMPACTING my own judgment.
I could not hear myself think because all I could hear was “that seems extreme” if I waivered in the direction where I seemed to want to go.
“It’s a big surgery.”
“Is that really necessary?”
“You would do that? Do you HAVE to?”
Do you know how many people have told me “all they needed” was a lumpectomy and radiation and they were “fine”?
Too many to count.
But were they my age at diagnosis?
Did they have an aunt with 3 separate occurrences of breast cancer?
Do they get treated for an autoimmune disease?
We are given a CHOICE and that choice is there for a reason. The reason is because this is my body and my life. It is not my husband’s. It is not my children’s. It is not my parents. It is not those that care for me. It is mine.
I have to choose.
I have to stand at the end of it all to say, “I made the best decision I could make and I could have done nothing else. I have no regrets.”
I prayed for clarity.
I asked others to pray for me to have a clear mind to make a decision.
Praise the Lord, God put people directly into my path that spoke honest words of wisdom to me in those next few days.
Dan went out of town for business so I went to the plastic surgeon appointment alone. That doctor sat down in front of me and simply asked, “do you know what you want to do?”
In John 21:18 Jesus is talking with His disciple Peter telling him that “others will dress you and take you where you don’t want to go.”
I remember when my youngest was little we had to take him to the doctor. He was scared of the doctor and always had been. For years, prior to going, he would repeatedly ask if he was going to get a “shot” that day. We would never lied to him to try to ease his anxiety out of a fear that doing so would backfire on us so, instead, we would say, as honestly as we could, “I don’t know buddy; you might have to have one this time.”
It was hard having to take him somewhere that he did not want to go; where he was scared to go.
In his sweet childhood, he was quite shy and nervous around new people, places, and unknown experiences. In fact, it was often the fear of the unknown that made him most anxious. He seemed to think ahead wondering or worrying who would be there, what it would look like or feel like.
I often think that he and I share the same brain as that is so similar to how I process things.
There was one particular time at the doctor that was the worst; I think he had a rash or something that needed to be assessed for treatment. As we approached the front door of the office, he hard-stopped walking. Completely stopped and dug his heels into the cement.
Can you envision trying to pull a young elementary age child to go forward? Can you see him with legs locked, heels firmly placed into the cement ground, head down, back arched, with arms stretched forward because his dad and I are trying to coerce him into movement?
He was terrified for some reason and we could not move him an inch no matter that we were reassuring him that we would not leave him; that we would ensure he would be alright because we would be right there with him the whole time.
Crying hard, he conceded and into the office we went.
I remember another time, I do not recall WHY he would have said this, but he asked me about “the oxygen mask that would smell like bubble gum” and if he would have it too.
He was 4 years old when his older brother required a rather major surgery to repair ligaments that were deformed due to being born with a club foot malformity. We took our youngest (maybe it wasn’t a good idea, but we wanted him to feel involved with what was happening with his brother as he seemed rather intuitive and introspective about things instead of being “clueless”) with us to the pre-anesthesia appointment where they showed both boys the oxygen mask smelling of bubble gum that our oldest would see again on his surgery day.
That experience had been years prior to when his inquiring mind paired that event of his brother together with whatever doctor office experience he was about to have: and it brought him anxiety and fear because that was what was known to him.
How often does that happen to us? We allow fear and anxiety (do we really allow it??? I don’t always feel I have the choice when it shows up…) to take over all rational thought because of a previous experience when we are suddenly faced with something new and unknown.
In 2021, my best friend of 20 years forever finished her battle with Colon Cancer.
We were months apart in age. We were both nurses for about the same amount of years and worked in very similar fields. Our mothers and mother in laws were similar in temperament. We were married almost the same amount of years and both married to a “Dan”! We had children the same age. We laughed about the same things. We both analyzed every thought and action said or done by those around us. We both believed that life mattered and what we did with our lives made a difference in this world around us.
Her experience with cancer is the experience that I recall now.
I remember the day she called me to tell me of her diagnosis in 2016. She told me that her husband was not with her for that infamous scheduled colonoscopy because she did not think it was going to be a big deal. I thought it was interesting that she had prearranged for a friend to take her home when it was over so he would not have to take the day off of work.
She had to call him on the phone to tell him a cancerous mass had been found in her colon.
What I do not remember is how that felt to her to make that phone call. I’d asked her so many things about her life and her cancer… but not about that. I did not ask her how she told her children and how that felt… before, during, and after.
At the time, those seemed to be silly questions. I figured I knew the answer: horrible. “It felt horrible, Am.” Of course, Al, of course it felt horrible- I can’t even imagine.
Now I can.
OhAli, it is the worst thing ever. I wish I would have asked you about that. How did you do it?? What were your thoughts?? Did you pray first or were you so shell-shocked you felt numb? Were you worried about Dan? Were you broken hearted because you knew you were about to change their worlds and break their hearts?
We aren’t supposed to hurt our children. Ever. Discipline, yes. Hurt? NO. My life as a mother has been one of protection. Of support. Of encouragement.
Have we had hardship that we had to face with them? YES. But we were always shielding them and making a path before them all the way.
Not this time.
And now we have a precious girl brought into our lives…one whose own momma had only recently passed from breast cancer before her battle with it could ever really start.
OhAli, I miss you. I cannot even describe in words how I wish I could talk to you about how to do thiswith my kids.
But first… I have to tell Dan.
On February 4 I was in Muskegon sitting by Lake Michigan while my husband was working in Atlanta. I had texted him to ask him to carve some time out to be alone and undistracted so we could talk before I had my luncheon meeting.
It was beautiful by Lake Michigan. The air was crisp and the sky was even a little blue that day with the sun trying to peek out from behind the puffy clouds. There was not a lot of snow but the ground was frozen.
Have you ever walked on frozen sand? I highly recommend doing it.
As I sat on the bluff overlooking the beach and lake, I could see the open water of Lake Michigan crashing into the ice shelf that had formed up to the shoreline.
It was beautiful…quiet…peaceful.
Matthew 6:26
“Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they?”
The old hymn His Eye Is On the Sparrow kept echoing through my head:
“Why should I feel discouraged? Why should the shadows come? Why should my heart be lonely and long for heav’n and home when Jesus is my portion? My constant Friend is He; His eye is on the sparrow and I know He watches me” (Civilla D. Martin 1905).
Dan calls while I sit in the serenity of that moment. I am able to calmly explain to him that I had felt a lump in my breast the evening before which caused me to remember I had been told upon scheduling that this upcoming 2nd mammogram was NOT because of breast density. I confessed that I had suddenly recalled it was to directly screen my left breast only.
I calmly told him the verse from Isaiah 43:1-3 that had been revealed to me by the Lord the previous night~
Do not be afraid…When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the Lord your God…your Savior.
We both cried.
Atlanta felt very far away in that moment and he would not be home until later that week which would be the day after the 2nd mammogram.
We encouraged each other with hope that I could very well be wrong in my prediction…although we both knew I was right. We decided together to keep these thoughts and concerns to ourselves until we knew with certainty what was going on.
When we saw how deeply the possibility of having cancer was affecting us, we did not wish to put these worries onto anyone else until we had to.
Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own (Matthew 6:34).
I apologized to Dan for hurting him. I know in our vows it says, “in good times and in bad, sickness and in health”… and we’ve been through so much of that already and now… there is even more hurt to come. My physical body is hurting him and I cannot stop it from happening. I hate it.
The rest of the day and week somehow manages to pass and Thursday has finally arrived.
The check in for this 3D Mammogram is the same as before… put clothes into a locker, put the white gown on that opens to the front, and step into the exam room. When I walked in my previous mammogram image was up on the computer screen for the technician to know what she was looking specifically for in this current one.
In all irony, my job as an RN has given me some experience at looking at x-ray’s and ultrasounds. I have seen what “normal” looks like, how cysts look different from a solid mass, and what lymph nodes are visually. As I look at the screen, I can see as plain as day the dark “paint splatter” that rests inside my left breast.
I state aloud, “well, there it is I guess.”
The technician asked me if I had palpated anything on my breast before so I, as I began to cry, pointed to a specific area. THE specific area. She marks it with a pen so she can tell on the imaging if this is the same “spot”.
“X” now marks the spot.
The mammogram is completed quickly and I am escorted to a waiting room while the radiologist looks at my films to determine if a “next step” is required. In my heart I KNOW one is. The certainty of what is happening is heavy on me.
She comes back and confirms that an official ultrasound is now necessary. I must wait for a technician to be available for me to have one so I text Dan to tell him what is happening. He is still in Atlanta sitting on pins and needles of helplessness.
In not too long of time, a young woman asks me to follow her to the next exam room. I laid down on a table to, once again, expose myself to a stranger. Trust me, that particular aspect of exposure does not get any easier within this process.
She begins the ultrasound and I can very easily see what she is doing… what she is measuring… what she is labeling. I tell her that I am an RN who assists with Ultrasound Guided Fine Needle Aspirations and Biopsies and that although I know she cannot technically tell me anything, I can clearly see something IS there.
Her non-verbal communication and eye contact confirms my suspicions.
She tells me that a radiologist is going to come into the room next to talk with me. I laid there alone in the silence of the room for a few moments with my heart beginning to pound faster.
He comes in with her and sits down. I don’t think that is ever a good thing to have happen.
I ask him if I should call my husband to put him on speaker phone to be a part of whatever is about to be said to me and he tells me to wait because he would like to do another ultrasound with the technician before speaking his mind to my husband. I’m encouraged to text him to be ready for a phone call.
The second ultrasound is completed as I watch the screen with them.
The doctor comes back to his chair to have me call Dan. With Dan on the phone, he begins to say words like “biopsy needed”, “we need to see what these suspicious spots are”, and potential “treatment plan” ideas.
Both the doctor and technician are extremely apologetic for having me wait until the next day to get a biopsy done; both wishing they could fit me into today’s schedule. But, it is scheduled for Friday and they leave the room with Dan still on the phone.
What else is there to say to each other at this point?
I love you. It’s going to be alright. I wish I was there. I wish you were here. I’ll see you tomorrow when it is done.
Oh Ali, how did you do this??
I’m supposed to work the next day when the biopsy has been scheduled so I decide it is time to rally my co-workers around me while I see how I can adjust my work-day to accommodate this new “crisis”.
I walk over to Endoscopy and find my support co-worker and ask her to quickly get the other one I lean on. She immediately can tell I’m starting to get visibly upset as the shaking inside of me started to escape my weakening control over it.
In the “privacy” of a storage room it explodes out of me to verbalize what is happening. As I do the panic within surges over top of me.
My friends quickly surround me and offer the comfort only a nurse can give; optimistic yet realistic at the same time. They arrange my schedule and assignment for the next day before sending me home after lots of hugs.
Home.
Dan is not there for safety.
I am alone with a secret I must continue to keep for just a little while longer.
My insides are churning. The acid in my stomach is boiling. The ache in my head is pounding.
I push it down and focus on other people’s needs to get through the evening.
Friday morning I wake up and head to work as if it were just any other day. My co-workers now know so I have a sense of security to feel my feelings of anxiety as I attempt to function in my assignment for the morning until my biopsy at 11 am.
Dan is due to fly home around that same time.
I was put into yet another exam room where the ultrasound technician was going to assist the radiologist with this ultrasound guided biopsy. He walks in and says, very honestly, that these are “concerning” spots but could still be scar tissue so don’t lose hope.
I do not tell him that I have been prepared by the Lord that I WILL be going through this fire…I have a certainty about it.
I watch the biopsy as it is happening: the nurse in me is too curious to not pay attention. I see the needle go directly into the “paint splatter” as well into a 2nd area they wanted to test.
It is over quickly and I am informed that the result, because it is a weekend, will not probably be available until the upcoming Tuesday. As a healthcare professional, I assure them that I am aware of that reality.
They tell me a “nurse navigator” will be calling me as soon as the results are available to speak to me about more “next steps.”
I get dressed to leave for home and wait for my first hug with Dan.
I’ll leave that moment private to myself.
We now have a weekend to endure in silence so plans go into motion of how to fill time without it appearing that is what we are doing. It is interesting how one can compartmentalize something in order to function, don’t you think? We even choose to talk to our son stationed in Washington while serving in the Navy-like nothing out of the ordinary was going on.
We had not talked with him in a little while and I did not want the first time we reconnected on the phone to be because I needed to tell him something BIG. I wanted to talk to him just to talk to him and have him talk to us casually for the same reason.
I quickly ended the call though, because all of the sudden I envisioned what we needed to soon tell him and I became overcome with emotion over the mere thought of it.
My love for my son is unmeasurable. The distance between us in mileage feels like too many. The time constraint on travel for a leave is too narrow when someone is in the Navy. A hug of reassurance is a long way off and my arms are aching for him.
On Sunday I determined to start praying that those results would be available on Monday instead of Tuesday. The waiting was HARD. The silence of secrecy was HEAVY. I told the Lord that I did not want to be at work when that “call” came through.
I busied myself on Monday with odd errands. We have a shopping center in Lansing called “Frandor.” I found myself wandering around there until just choosing to sit in my car in its parking lot.
Praise the Lord! My Chart app suddenly alerted me that there was a “new result.”
I called Dan and said that the result was in: would he like me to open it so we could read it together? Was he in a place at work where he could listen and respond as he may need to?
He made himself ready and I opened the app.
Invasive Ductal Carcinoma.
What is that, we both wondered?
A quick Google search gave me the confirmation I knew in my heart to be true: cancer.
Oh my God, my God… I have breast cancer.
Lord, help me… I have breast cancer.
Oh Ali, I KNEW it. How can it be that I can’t talk to you about this??? How can you tell us the way to tell our children???
WHAT DO WE DO NOW became the next thought. We HAVE to be together and home was not an option just yet as our precious girl was there: we were NOT ready to tell her or anyone else just yet. We needed to think. We also knew that the nurse navigator was supposed to be calling soon so we chose to do what a normal American would do: we decided to meet at Costco.
As I drove there a wave of numbness came over me in place of the panic that had been held at bay for the weekend. Pulling into the parking lot, a call came in from the hospital. Answering it, I was introduced to this “navigator.”
In a matter of minutes, Dan arrived and climbed into my car as she talked to us about what those results meant and what we can expect to happen in the next few days to weeks. A doctor’s appointment was made with a “team” of specialists to help us determine our staging and what the best course of action will be for me for a week from Thursday.
She says terms like “single mastectomy”, “double mastectomy”, “lumpectomy with radiation.”
We get off the phone with her and sit there quietly together in the parking lot of Costco. The world is bustling around us while ours feels to have slipped off its axis.
I’m deep breathing with my heart pounding.
I say, “this is really happening.”
We hold onto each other as we cry.
It’s time to let our world know.
Others will dress you and take you where you don’t want to go.
“The Lord will guide you continually, giving you water when you are dry and restoring your strength.”
Abraham found himself being led away from his home to a land he did not know.
The Hebrews were led to Egypt where they were eventually enslaved.
The Hebrew nation was then led to the Red Sea where they feared impending death until God miraculously parted the waters for them.
They were then led to Mount Sinai where they would personally encounter the living God. But they were terrified when in His presence and became disobedient: choosing a golden calf to worship that they could control instead of the omniscient, omnipresent Holy God.
They were next led to the wilderness where they would “wander” for 40 years in order to learn to trust and depend on the Lord before being allowed to enter the land promised to them.
Elijah was led into the wilderness after publicly declaring a three-year drought in front of the evil King Ahab and, his even more evil queen, Jezebel. He was told by God to stay by a temporary brook in Cherith. Cherith means “a cutting away”: here, Elijah was “cut off” from all things self-sufficient in order to be prepared for further use by God. Here he learned absolute dependency on God.
After being baptized, Jesus was led to the wilderness where He fasted for 40 days and then was tempted by Satan.
Everything in Jesus’s ministry LED Him to the cross.
We, too, are often led places we did not plan to go. We are often trucking along through life when something happens that turns us off the planned path. Sometimes it is a quick detour that provides an opportunity to see or experience things we never would have if that event had not happened and, for that, we are grateful. We might even say “this way is MUCH better.”
Sometimes it is a longer detour that makes us late for our destination. It is an inconvenience without entertainment. We aren’t pleased, but we still get to where we had been going. This detour could be because of something or someone else on the road or maybe we made a mistake and missed our exit. Natural consequences are real after all. We may veer off our path but can make it to the destination anyway.
Sometimes, something happens and we end up going in a different direction toward a place we did not plan on going at all. Many times we do not like this: THIS was not the plan after all. We can reject the new plan and fight like h*&^ to get back on track to where WE want to be or we can settle in and accept this new place to make it home.
And sometimes, something happens that simply hard stops us and we have no idea which way we will end up facing when it is all done. It’s scary and overwhelming. It’s not always without a sense of hope; that where we end up might not be bad…but we do know it will be different.
It can happen in a blink of an eye with one phone call: you have breast cancer.
Proverbs16:9
“In their hearts humans plan their course, but the Lord establishes their steps.”
On January 17th I had a routine mammogram scheduled. I was “late” in having it by about 3-6 months from my previous (and normal) one. I have a physical annually where a breast exam is routinely done which had been the previous March- again, normal.
As the Lord saw fit, He brought a young woman into our lives, home, and hearts a year prior. Her mother had passed away from a very late diagnosis and fully developed metastatic breast cancer. She moved in with us after her passing.
As the anniversary date of her death approached, I felt convicted to quit dragging my feet and go get that darn mammogram. I felt it would dishonor her if I did not go get it done.
So there I am in my “glory”; feeling good about doing the right thing.
A few days later, I get a phone call where I was told I needed a second mammogram; a 3-D one. Let me just say, in that moment, that was all I heard them say. The last mammogram I had required a second one as well, so to have this happen again simply annoyed me and I tuned out to whatever else was said and rescheduled it.
Yes, a paper even came in the mail to say what the original mammogram showed and my Primary Care office even called me to make sure I was doing a follow up. I still paid no attention to the details and went on with my life without telling anyone else of this “annoyance” but my husband.
My 3-D mammogram was scheduled for February 6. On February 3, I went to a hotel near Lake Michigan in order to spend some much needed time alone with the Lord before having a lunch date the next day with a friend who lived in that area.
My time away with Jesus is something I am trying to schedule in every few months in order to nourish my relationship with Him and to be nourished by Him so I can effectively do the compassionate ministries I am involved in: one cannot pour from an empty cup and my cup had been getting less full thanks to life challenges.
My husband is used to my “time away” needs and is fully supportive of my role in ministry so off I went while he was in Atlanta for his job.
Usually, when I’ve had a personal spiritual retreat like this I have some kind of a plan: what to read or focus on. This time seemed different. I packed differently bringing multiple journals with me as well as my Bible and devotionals. The journals (especially multiple) were not my “norm”.
My dearest sister friend gave birth to her precious 4th baby boy the night before after having a rather stressful last few weeks of her pregnancy. He came a little earlier than her others had and our stress leading up to his arrival had been significant. With her other boys, “my darling boys” I call them, I conveniently was working when they were born and could quick visit her/them rather soon upon their entry into this world outside of her womb. This sweet one, however, was different. I wanted to see him badly but I knew in my heart that I needed to wait on visiting and get going to be on time with my date with Jesus.
That is a significant detail.
It had become a “pride thing” to be able to say I was one of the “first to meet her sons” and here I was choosing to not do that and would accept that I would instead see him in a few days.
I KNEW I needed to get going, but I was not sure why I had that urgency.
I got to the hotel, figured out a dinner plan, and turned on some music. Again, my “normal” would be worship music, but for whatever reason music without lyrics was what I craved: an instrumental hymns station was chosen.
I began to read through journals to see what I had written, where the Lord had carried me from or through as I was distracted by a significant need in the life of my other best friend. I was definitely seeking peace as I tried to intercede for her and her sweet family.
In my reading and praying one particular passage stood out to me like a beacon.
Isaiah 43: 1-3
“But now this is what the Lord says- he who created you, Jacob, he who formed you, Israel; “Do not fear, for I have redeemed you; I have summoned you by name and you are mind. When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the Lord your God, the Holy One of Israel, your savior.”
Well.
What on earth was that about?
I wrote it down in a few places and pondered over it. I saw it in correlation of what had been and was happening in my friends lives. I claimed it on their behalf with thankfulness.
And yet.
I suspected there was more to it than that.
I am a caregiver. I am a person who ministers to others first and hardly looks after myself. In fact, my new discipline of scheduled “time away” with the Lord is in response to my poor self care. It is easier for me to take care of others than to do more than the surface things in care for myself.
Let’s be honest: how often do YOU pray for yourself or ask others to pray for you when there is not a crisis? We often see the need in others as superior to our own, don’t we?
The truth of our faith is this: Jesus died for ME too. Jesus died for YOU too. He did not just call others His beloved; He called ME His beloved. He loves YOU as much as He loves the hurting person in your life that has a situation breaking your heart. He loves me that much too.
But we do not often live that way.
It is easier to encourage someone else than to be encouraged myself.
Here I am in the hotel room…feeling a strange peace with zero resolution or revelation. I confessed to the Lord that I was sorry I accept MORE from Him than Him. That I desire His gifts and not that He is the Gifter.
I opt to take a bath (another out of the normal thing for me to do).
As I was preparing the water, I stood in front the mirror. You know how those hotel mirrors can be: UNFORGIVING.
Enter in the self-loathing.
As I stood there, for whatever reason, I touched the top part of my left breast (not my right). I felt the lump in that moment.
Suddenly, the memory of what the technician had told me on the phone when we rescheduled my mammogram rushed to the front of my mind: we need to reevaluate the LEFT breast. I could see the paper with the initial mammogram result that had been mailed to me in my mind: a “mass” in the left breast.
I looked into the mirror and made eye contact with myself.
That Scripture came back to me~
DO NOT FEAR
WHEN you pass through the waters
WHEN you pass through the rivers
WHEN you walk through the fire
This was not an IF situation. This was a WHEN. And the WHEN was NOW. And the “you” was ME.
As I stared into the mirror at my reflection, I said to the Lord, “This is really going to happen isn’t it? I’m going to have cancer.”
What a strange reality to settle over a person prior to the biopsy even happening, yet it was there. A certainty.
I opted to not say anything to anyone. I took a bath with those instrumental hymns soothing me. I went to bed and slept extremely well in the Lord’s embrace.
The wind had just been knocked out of me.
In the morning, I knew it was time to tell my husband.
What Kind of Peace Is This? 